“Baby RB”: Father fighting in the high court for his baby son’s life
Baby RB, (So called for legal reasons) was born with congenital myasthenic syndrome (CMS) a rare neuromuscular condition. His father will plead the case for his life in the high court tomorrow, attempting to stop a hospital withdrawing the support that keeps his son alive.
The baby’s mother, who is separated from his father, is supporting the hospitals decision. Doctors say his quality of life is so poor that it would not be in his best interests to save him. He has been in hospital since birth.
Baby RB’s condition, (CMS) severely limits movement and the ability to breathe independently.
Lawyers representing Baby RB’s father say that the child’s brain is not affected by the condition, arguing that he can see, hear and feel and recognise his parents. Apparently he is also able to play with toys.
A spokeswoman for the British Medical Association said: “When the parents and the clinical team don’t agree on the treatment for the child in question, the only way forward is to go to the courts and for the courts to decide on what is in the best interests of the child, which is paramount.”
The father will try to convince the court that his son has a good quality of life by submitting video footage showing the boy engaging with his parents and playing with his toys.
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roger Brando on Tue, 3rd Nov 2009 5:57 pm
this to me is appalling. if the child has full brain function and will develop with full brain function surely we have an obligation to keep this child alive. it is the pain management that needs working on. this child deserves to live, at least we can monitor its capabilities and make the decision later otherwise we are killing people with the brains of people like Stephen Hawking, clearly a stupid waste of potential for a person in a unique position.
this is legal homside and not in the childs best interest.